Sunday, December 22, 2013

WEGO Health Activist Awards

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It's that time of year again.

The WEGO Health Activist Awards were created to embody the mission of WEGO Health: to empower Health Activists. We connect with so many inspiring Health Activists who raise awareness, share information, support their communities, and much more - often without recognition.

Because our network is centered around Health Activists, we knew it was up to us to tell these leaders how great they are. We wanted to celebrate those who have made a difference and thus, the Awards were born. We've since found that these Awards are one of the best ways to introduce new Health Activists to the online community and have community members say "Thank You" to the leaders they love.

Go here to nominate someone: 

I want to thank Barby Ingle of the Power of Pain Foundation for nominating me for the award. It is truely an honor.

To see my nominations here is the link:

Friday, November 29, 2013

Surviving and Thriving the Holidays!

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Wow. It has been a while. It has been a busy year and  as most of you know we need to pace ourselves.

November RSD Awareness month was a huge success.  There were hundreds of events all over the country to bring Reflex Sympathetic Dystrophy aka Complex Regional Pain Syndrome into the public eye. The Power of Pain Foundation did an amazing job at spreading out and involving communities in an effort to provide information to the general public about this condition.

On to the reason for the post: 

The holidays are approaching fast. Everyone is suppose to be happy........Really?

I think the holidays are hard for many people. Family relationships are magnified; they never live up to our expectations. Lost relationships are mourned.

Here are my Top 10 Tips for Surviving and Thriving the Holiday

1. Don't over do. Let people help you. No one expects perfection! (except maybe you)

2. Spend you time with people you enjoy. Don't waste your time with people because you
    feel "obligated" to visit because it's the holidays.

3,  Now is NOT the time to go on a diet, quit smoking or otherwise deprive yourself

4. Don't overspend! Many of us, including me, live on a fixed income.
    How about instead of stretching your budget for expensive gifts, give the best...

Give of yourself!  No matter how broke, sick or down we are, they is ALWAYS someone out there who is going through an even worse time. Be a friend; a support system; a mentor.

5.  Don't watch the can be depressing

That was the Surviving..Now for the Thriving.......

6. Laugh
7. Laugh
8. Laugh
9. Laugh
10. Laugh

Hope all of you have a wonderful holiday season. Merry Christmas

And, don't forget to stop by my radio show, Living With Hope. Lots of great guests and always laughter! Just click on the link Mondays @4pm pac and Friday's @9am pacific

Wednesday, February 6, 2013

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My Body, Mind and Spirit network has just become a Featured Host on Blogtalk radio and it's all because of my listeners and, of course, my sponsor for Living With Hope, the Power of Pain Foundation.

Living With Hope (originally called Living With RSD) started in 2007 with my hope of getting more information about my own health issue, Reflex Sympathetic Dystrophy. I interview doctors, therapists and patients; both traditional and more recently alternative practitioners with expertise that runs from prevention to cutting edge technology.

I try to empower, inform and educate my listeners with information that may not be readily available in their local area. Through the power of the internet, I personally get to speak to some of the most knowledgeable doctors and researchers in the world.

Living With Hope is broadcast live on Monday's 4pm pacific and Friday's 9am pacific. You can call in to ask questions to my guests or post your questions in the chatroom to be answered on air. If the time is not convenient to stop by the live shows, you can listen to the archives at any time on my radio page.

Savy Seniors, my newest show is live on Wednesdays 3pm pac. My co-host, Sharon Rowell and I cover all the latest news about health, medicine, safety, caretaking and programs that are available to help seniors live a fun, productive and long life.

And, for fun of course I do a Saturday show, 3pm pacific,  with readings from spirit given by Seers of the Soul and lots of fun music from the 50's-80's. Oldies but goodies.

If you are interested in being a guest on any of these shows, please email me at

Saturday, March 10, 2012

A Work in Progress

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What was your first thought when you were diagnosed with a chronic illness?

Could you have ever imagined what happens next? Did you know at that time that your old life was over and you were embarking on the biggest journey of your life?

It has been 7 years now for me. At first, I refused to believe the diagnosis of Reflex Sympathetic Dystrophy and pretended I would be getting better soon. I figured it was just going to take longer than usual. Over the years, like anyone else, I had had my share of surgeries and sickness. Nothing prepared me for this! This was a whole new level of B A D......

I went through the usual; denial, depression, anger..lots of anger...Stayed there a really long time. The "Why Me" and the "It's Not Fair" phase lasted longer than it should have. But, since there is no guidebook when your life is being destroyed bit by bit, I just let it happen. 

By the time I had gotten to my lowest, darkest place, the disease spreading like wildfire through my entire body, I started to give up.....Listening to the medical "experts" who proclaimed my life was over was just the icing on the cake. I figured they were experts, right? 

WRONG. They were not the experts on my body. I was! 

How could I have let strangers determine what my life was going to be? Why did I not see it?

Hence, the rebuilding part. I learned new tools. New ways of thinking. Ways to work around my physical limitations.

I will probably always be a work in progress. But, that's OK. I am best builder for ME. I know what I want and need. No one will limit my dreams, my desires and hopes. Not unless I let them......


Monday, February 13, 2012

Giving Up Is Not an Option

There are times in everyone's life that feel hopeless. Life is not easy; I don't know that is is supposed to be. What I do know is that life is what YOU make it.

I have lived with a chronic illness (reflex sympathetic dystrophy) for over 7 years. The loss cannot be measured. My career, my life savings, friends and my identity. I was no longer a successful consultant,  juggling career and family. I was what????

Somehow, I became a "disabled: person. That was now my identity. I could no longer care for myself; dependent on others for the simplest things like eating. It was humiliating and depressing. For many years I accepted that title. Living without hope; wondering how much worse things would get. My disease is incurable and progressive. The doctors make that perfectly clear. Wheelchair-bound, medicated to the hilt, I wanted to give up. If the doctors said there was no hope of getting better, then I should believe them, right?

For some reason, I decided to see what I could accomplish in one years time. If, at the end of that year, I was still a vegetable in a wheelchair, I was planning an escape. It was not an easy decision but I had nothing to lose.

The first thing I did was decide what "level" of quality of life I could accept. Knowing I would never be able to work again was the hardest. Because my right hand is atrophied, getting any function back in that was not possible  and my left hand is also severely limited.

Walking again became my first goal. In order to do that, I needed to get off some of the medication that cause dizziness, blurred vision and depression. Yep, depression from the 3 antidepressants I was taking. Ironic, isn't it. That the medications they gave me actually INCREASED my depression. When you read all the side effects of medications, you never think you will be effected. It's always someone else...right.......

That was in 2009. It has not been easy but I did it. Am I still physically limited, yes. But I can walk with a little help sometimes. Mentally, once I got off the medications, I started to think clearly again. I knew that even if my physical condition didn't improve much I could still get mentally to a place of happiness and contentment.

Mental Remission is what I call it. I made a list; one side things I can do and one that just was not ever going to happen. I tried to be realistic. At first, the list was very short. Then, I began looking around to find something that would make me smile again; laugh again (sometimes at myself), and finding joy in the smaller things in life. There were all there, hiding in the fog of depression.

If you see even a small bit of yourself in this post, I hope you will make that list. Get involved with others. Reach out! Help is available! Figure out just what you can still do; and go for it!  Everyone has a talent. Guess mine is talking. That's why I started my radio show, Living With Hope.,Just because you may be ill, home-bound or physically challenged does not mean it is an end; it is a new beginning and can be challenging and exiting.